Hi there, I wanted to find some people, or someone who's been told they're cancer is incurable, or that their chances aren't looking very good. Because it has spread is one reason they tell they cant cure you. His oncologist didn't really have any advice other than to keep taking the antisickness drugs. Hello, my name is Mel and I never imagined I would be posting on a cancer forum. He will get through chemo. As cancer catch-up strategies for the next stage of the pandemic are developed, it is essential that the often-forgotten needs of patients with incurable cancer are recognised and addressed. Four days ago I was diagnosed with incurable bowel cancer. Anyway, I can respond from the point of someone who has lived with an incurable cancer for the past twelve years and managed to maintain a fairly active life of good quality in that time. How did you stop the morbid thoughts popping into your head (if you had any) if you thought it was only a month? I was one year older than you when I was first diagnosed with cancer. http://www.australiancancertrials.gov.au for national trials Good luck to you and your husband. I love so much your stories that say I was told a month and I'm still here years later. We are on watch and wait three monthly scans and the anxiety is sometimes crippling isn't it. OK, I am 55. Lovely to hear from you again, sending love. This website uses cookies. Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work. Cheers Vicki Hi Rebecca, @spannerkate As @lisa7 has said our Da was told the 6 liver mets can only be controlled and the oncologist was very very pessimistic and used the word ‘incurable’. @Vicki Anne, thanks, you're right, at no age are you ready to deal with dying. We currently don't know the exact spread of the cancer and will be undergoing a PET scan and keyhole surgery. What a lovely post. This is what I feel like I need to know someone else especially my age, is going through. Keeping both of you in my prayers. Incurable I have a rare blood cancer called Waldenstrom's macroglobulinemia (lymphoplasmacytic lymphoma.). It’s good to hear from you but I’m sorry to hear of the developments for your partner. @maddie86, I'm so glad your partner is getting better! Brain - cyber knife, Also if poss get to sea and beautiful places. When cancer spreads (called metastatic cancer), it's much harder to treat. Particularly with breast cancer, there are very good treatments indeed, and people can live for very many years with secondary breast cancer and function very well. Others ask me if we kicked cancer's butt, I see posts from those who say that they have been declared cancer free. The worse my pain gets though, the more I get the feeling that its not going so well and my last scan wasn't good. Yeah I'm the same as you, the cancer has spread so that's basically why they can't cure it. We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people. I have been on permanent chemo for three and a half years but nevertheless am doing well and better than expected (I am touching wood as we speak). The first aim of the current study was to explore how nurses perceived their self-efficacy and performance in sup- porting self-management activities in patients with incurable cancer. I'm often philosophical about it like you, I really appreciate the moments I've got. Julie, Hi Rebecca @harker, thanks, I do write, I love it and it does help. I was told that the primary bowel cancer was pretty stable but it was a good idea to get on with surgery. :). I find the specific focus on ‘cure’ in cancer quite interesting as there are so few diseases we can actually cure. We were upset but we stuck to our positive aims to fight it. This is done using long term / maintenance chemo which is really doing the job for me. We still have a fight on our hands but we always have an aim to beat this. They took 80% of my liver and everyone was very pleased with how it had gone. Just by writing you've made me feel pretty good. The way I cope with this is to focus on controlling the cancer so I can get on with enjoying my life. The way I cope with this is to focus on controlling the cancer so I can get on with enjoying my life. Having an incurable cancer is of course also serious but there is often lots of treatments available to keep the illness under control. Cancer is a life changer, or should I say arsehole. Good Luck My liver mets totally disappeared after six months of chemo and have not been see since. and there is a group on this site. Same as me, they cant tell me anything about what the cancer I've got is going to do and when they do, they're wrong. Please don’t apologise, on this journey we do have to look after ourselves when we need to, it’s important. It is such an ordeal but if hopes and thoughts of strangers can help, then you have all of mine.Lots of love, Gypsyxxxxx, @spannerkate , hope things are going well. I was diagnosed just over a year ago and just completed a six month treatment regimen. Anon. I am sorry to hear about your partner, but I do think this is at least partly to do with language. Someone to fight with us. Is this you? It always takes me a little while to get my head around new news, but you will get your head around it and will be ready to fight again. Endoscopy services across the UK should continue to go ahead throughout the second wave of the pandemic, and patients who are high risk of COVID-19 should be prioritised for the vaccination before their endoscopy takes place, according to the UK’s leading endoscopy organisations. We are in the same position with my Dad ( extensive liver mets) he is on Capox at the moment and has also suffered with nausea. The only you have total control over is your ATTITUDE, Hi everyone, It is hard to be told something like that. The diagnosis of incurable cervical cancer does not mean that you need to stop doing the things that you enjoy in life. This research aims to explore patients’ experiences and perspectives in relation … Dear @spannerkate , hoping for the very very best for Richard as he starts next week and love and thoughts to you both. But I've had my future ripped away from me, I wanted to do so many things. I'm selfishly back on now to ask for some advice. They cant tell where it may pop up next. Also look at pension and all benefits blue badge so on The song "some days are diamonds" is a John Denver song. Eventually I will become resistant to the treatment but already there are newer treatments in clinical trial that are looking real good. 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